Friends of Monash CF News

 
 
 

I will not be the first nor the last to say that we are looking forward to farewelling 2020 and welcoming in 2021.  We have everything crossed in the hope that 2021 will see the arrival of a vaccine, recovering economy and positive outlooks for all. 

We finish up this tricky calendar year having supported the Monash CF Community with donations valued over $60,000 - not a bad result considering.

I wish you a very Merry Christmas, restful holiday and we look forward to continuing our support of the Monash CF community in 2021. 

Keep safe and well. Best wishes, Felicity Stretch - Founder/CEO

 
 
 
Click here to donate
 
   
 
 

MCFF Cheltenham Golf Club Golf Day.its back!

 
 
 
 
  
 
 

Sponsorship opportunities are still available but please be quick as groups are filling fast.  Regular team bookings to open early in 2021 if groups remain available. 


Donations of quality goods/services as prizes and volunteering opportunities exist at this event for anyone keen and interested to support the MCFF. All contributions will be grateful received and acknowledged appropriately.

 
 
 

Monash CF patients: Register your interest now for a portable spirometer to monitor lung function

 
 
 
 
 

This year the MCFF along with other generous donors gifted substantial funds to procure units to make at home lung function testing a permanent reality.  If you are a Monash CF patient keen to use a Spirohome unit for at home lung function testing please log your Expression of Interest now. A message from the Monash CF Service follows...

"Dear patient/caregiver,

 It’s been one of these years. But there were some upshots: for instance, we started thinking how to do lung function testing at home. This can help with families or patients who find it difficult to come to our lab for testing.

We have previously trialled some home lung function devices but weren’t really happy with them. Now, a few months down the track, we have found a home lung function testing device that we are very happy with. It’s easy to use for families and our lung function lab has confirmed that it works well. To top it all off, we have received a generous donation to help buying a number of these devices. Unfortunately, we won’t have enough of these devices available for all CF families and we don’t know whether we’ll be able to get more.

The CF team will look at which patients/families are likely to benefit most from the use of one of these devices.  But we need you to let us know whether you are interested in having one of these devices in the first place. So please answer back to us whether you would like to be considered for one of these devices (answer: YES) or whether you’re happy to continue to have lung function testing at Monash, just the way it has always been (answer: NO). It’s important to understand that answering YES does not guarantee that you’ll get a device but you’re letting us know that you’d like to be considered for one. If you do get one of these devices, there’s a copayment of $50.

If you would like more information please, get in touch with us at MonashCF@monashhealth.org.

Kind regards,The Monash CF Service

 
 
Click here to reply to the Monash CF Service saying 'YES' or 'NO'
 
 
 

A new Innospire Go for 16 year old CF patient

 
 
 
 
 

In November the MCFF gifted a new nebuliser to a family in need assisting a 16 year old CF patient deliver much needed Pulmozyme. This patient will benefit greatly from this new device assist in managing the progress of lung disease. The MCFF was delighted to help this family in need.

 
 
  
 
 

Co-funding a new nebuliser with Cystic Fibrosis Community Care

 
 
 
 
 

In October the MCFF was delighted to co-fund, along with Cystic Fibrosis Community Care, a new nebuliser for an adult CF patient which replaced an extremely old unit which was not only slow but an infection control risk.  Wonderful to be jointly assisting the Monash CF Community with our friends at CFCC.

 
   
 
 
 
 

Monash CF Service Notice Board 

 
   
 

Monash CF Service December Newsletter

 
 
 
 
 
Click to read
 
 

Cystic Fibrosis Professional Development for Educators 2021

 
 
 
 
 

Monash CF Community: Please share this to your child’s/children’s educators (teachers or childcare workers) and encourage them to attend. If they would like further information, please direct them to contact the Monash CF Service (monashcf@monashhealth.org).

 
 
Click here to register
 
 
 

Past Monash CF Service Newsletters

 
 
 
 
 
Click here to access Monash CF Service past newsletters via the MCFF web News
 
 
 
 
 
Inspired to help? Click here to donate now!
 
   
 
 
 
 
 
 
  
 
 
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