This year the MCFF along with other generous donors gifted substantial funds to procure units to make at home lung function testing a permanent reality. If you are a Monash CF patient keen to use a Spirohome unit for at home lung function testing please log your Expression of Interest now. A message from the Monash CF Service follows... "Dear patient/caregiver, It’s been one of these years. But there were some upshots: for instance, we started thinking how to do lung function testing at home. This can help with families or patients who find it difficult to come to our lab for testing. We have previously trialled some home lung function devices but weren’t really happy with them. Now, a few months down the track, we have found a home lung function testing device that we are very happy with. It’s easy to use for families and our lung function lab has confirmed that it works well. To top it all off, we have received a generous donation to help buying a number of these devices. Unfortunately, we won’t have enough of these devices available for all CF families and we don’t know whether we’ll be able to get more. The CF team will look at which patients/families are likely to benefit most from the use of one of these devices. But we need you to let us know whether you are interested in having one of these devices in the first place. So please answer back to us whether you would like to be considered for one of these devices (answer: YES) or whether you’re happy to continue to have lung function testing at Monash, just the way it has always been (answer: NO). It’s important to understand that answering YES does not guarantee that you’ll get a device but you’re letting us know that you’d like to be considered for one. If you do get one of these devices, there’s a copayment of $50. If you would like more information please, get in touch with us at MonashCF@monashhealth.org. Kind regards,The Monash CF Service |