Dear friends,

The wonderful adventure of the ERN-Skin goes on!

As you know, the year 2020 has been a particular year for everyone, especially for healthcare professionals. Uncertainty and sometimes fear have become more important in our daily lives. 2020 has shown us how vulnerable humans can be, but also how courage, hope and solidarity can change everything.

The ERN-Skin team would like to thank you all very much for being so committed to us this year, despite the unfavourable context. Together, we have made the ERN-Skin stronger, enabling patients with rare skin diseases to have a better quality of life.

We are proud of the progress we have made with you and we are also ready to welcome 2021, which will be a crucial year for ERN-Skin as we approach the end of a cycle.

Thank you again, we wish you all the best for this year 2021. Take care of yourselves and your loved ones.

I look forward to seeing you all very soon.


Christine Bodemer, ERN-Skin coordinator.


Co-funded by the European Commission