See our multilingual recommendations for COVID-19 and rare skin diseases on the ERN-Skin website.
new Covid19 Clinical Assay has been developed on rare skin diseases thanks to
our European and French Networks!
"COVID-19 and rare skin
diseases. European observational study (data research) during an epidemic".
study concerns paediatric and adult patients with rare skin diseases and
suspected or confirmed COVID-19 infection who consult a medical team that is
part of the European Reference Network ERN-Skin or the Rare Skin Diseases Health
Network (FIMARAD). Professor Christine Bodemer (Hôpital Necker-Enfants malades,
Paris, France) is the principal investigator.
main objective of this European observational cohort study (research
data) is to determine the impact of a COVID-19 virus infection in a cohort of
patients with rare skin diseases and particularly if these rare diseases and
their treatments are risk factors of infection severity.
study is under registration on the following website : https://clinicaltrials.gov/
you have any other question, you can contact the ERN-Skin
CoordinationTeam : email@example.com